It would only be an hour long flight away when COVID is over. The main unbearable pain went away but now I have constant bladder pain. I would love to know more about the treatment you received. Professor Malone-Lee provides an outpatient service that offers assessment, diagnosis and treatment supported by fresh urine micrsocopy. I suspect an embedded infection. thanks, Carole, Hi Carole, it’s great to hear you’ve found an approach to try. We may also send your urine for specialised urine tests such as broth cultures (to improve sensitivity for bacteria) and polymerase chain reaction (PCR) to look for more unusual bacteria. Hi Melizza, I saw you also sent us an email so I’ve replied there with more information. After taking antibiotics, my uti cleared up on tests but i still have some symptoms. Do you know of any doctors in the US? Melissa. Perhaps you can send me a message and share more information about your doctor, in case this is useful for others in your area? What antibiotics do you take that are safe to use long term? Can you pls share your doctors informations w me . Diagnosed with IC in August but I don’t believe that’s it. From everything i’m reading, and the positive results from my urinalysis it sounds like I have an embedded UTI but my urologist says I do not have a chronic UTI! I keep getting UTIs. Getting a another cystocopy on April 6th, last one was in 2011. About one in five women will get a recurrent UTI, and women who have more than three UTIs are more likely to continue having them. It was clear from the beginning she wanted to help me, but she had no experience or understanding of this condition or how to treat it without guidance. It doesnt help that i have to self cath every day due to spina bifida. I hope we can help. Sadly, doctors and specialists, worldwide, are invested in the current status quo and will aggressively defend their positions. That original urologist went on maternity leave and her replacement had no idea about embedded infections. Regarding testing, you might like to read our article on why standard urine culture may be negative even when infection is present. You might like to read the information we’ve shared about UTI antibiotics, and also this study, which observed the outcomes of a long term antibiotic protocol for recurrent UTI, and describes how those antibiotics were selected. The urinary tract consists of your kidneys, the tubes that go from the kidneys to your bladder, and the tube … Melissa. My wife has same symptoms of embedded uti. I was trialled on an anti-cholinergic (Ditropan) which did not help. I also showed high levels of leukocytes & “no new growth” but urine samples have come back negative….despite feeling like I have a UTI! Melissa, Hi Adina, I can sympathise! An American living in Czech Republic. Please share more information. What next steps should I take to get a proper diagnosis? Hiprex is the meds that been on my mind lately, because it just seems so wonderful but then I read about the formaldehyde haha. Susy. This exam is called a cystoscopy. If you send us a direct message and include where you’re based, it’s easiest for us to share info that way. I have seen a gyno and a urologist. Some of the ways that recurrent UTIs are treated include: Extended course of antibiotics – Although a regular UTI or ‘simple cystitis’ may respond very well to antibiotics, for chronic and recurrent UTIs, antibiotics are typically needed for extended courses. He mentioned the ‘autoimmune’ theory and how this was connected to women when under ‘stress.’. Our list of clinicians that may be able to help also continuously changes. I was very lucky that my GP was so supportive and agreed to help with this unconventional approach. Are there any doctors in California who treat this that I can see or any tests I can request? I’ve been diagnosed with IC, but I don’t think it’s a true diagnosis. After a second negative test I was trialed on a course of antibiotics. I am seeing a urologist and at first she thought interstitial cystitis but I don’t think thats what i have at all.. Hi Charlene, I just sent you an email with more information. The professor mentioned in the story is Professor Malone-Lee. Hi Shahina, you can find more information about chronic UTI practitioners, including the one mentioned, on our UTI Treatment page. It’s common for urinary signals to improve long before your symptoms do. I’m in Birmingham, AL. I’m 20 and I’ve been dealing with my symptoms for 3 years and I’ve never properly been diagnosed. I’m scared because I feel its getting worse.i dont want sepsis or kidney infection I got your email too, so I’ve sent you some more information about how to connect with others on this protocol. Hi, have you had any feedback from UTI sufferers who have finished the treatment given to them by the London professor? It may be the case that an embedded infection will be identified if the biopsy was taken at the site of the infection, but missed otherwise. Early into treatment I had a change in antibiotics when we noticed my white blood cells and epithelial cells had suddenly shot up. Melissa. I’d love to hear more about your experience, if you’re happy to share. Once such a biofilm develops, whenever you get a UTI, instead of recovering completely, your body can be left with an embedded infection adherent to bladder wall, that is difficult to treat. I too have IC or interstitial Cystitis like you. This type of embedded UTI affects around ten per cent of people who develop a UTI, he says. I was just diagnosed with IC because I have UTI symptoms but according to several cultures, a cystoscopy, and an ultrasound, no infection or other abnormalities. 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